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Case
Studies of Chagas' Disease
"Bertha"
Bertha
(a pseudonym) lives in La Paz, Bolivia, and her medical
history
provides insight into the effects of chagas. She suffers
from chronic heart ailments from Chagas' disease.
As a child
living the 1930s, she was bitten by vinchucas
and infected with T. cruzi when she lived in
Tupiza, a small rural village in Bolivia. She later
married and bore four daughters. In 1960, she moved
to La Paz after her husband abandoned the family. She
made a living by sewing for wealthy people, but in 1974
she was diagnosed with Chagas' disease.
She tells
the story of her life and how she copes with chagas.
Until she was forty-four she was healthy, going up and
down the hills of La Paz to do her sewing. In 1974 she
felt fatigue. She began to get a swollen throat and
spit blood. She didn't know what it was, she had no
idea it had to do with the vinchucas bites years
before. She would get tired, fatigued, and experience
dizzy and fainting spells. She continued to do her sewing
though she sometime would faint while she was working.
The fainting spells continued for a year; the next year
her fainting got more severe and she eventually suffered
a stroke. Her children took her to a doctor, Dr. Jauregui,
who hospitalized her. She underwent testing, xenodiagnosis,
that indicated she had Chagas' disease. X-rays showed
that she didn't suffer from cardiomegaly (and enlarged
heart), but that she probably had lesions in her heart's
electrical system. These were caused by T. cruzi
amastigotes being encysted in her cardiac tissue. This
condition can be fatal.
Dr. Jauregui
implanted a pacemaker in 1980 when Bertha's heart rhythm
worsened. The pacemaker keeps the heart rhythm constant
and Bertha's condition improved. She was able to resume
her seamstress work, although she suffered minor fatigue
as she climbed the sreets of La Paz at 12,000 feet.
Two of
Bertha's daughters also suffer from heart problems.
The eldest daughter was born with heart trouble and
is always fatigued. After Bertha learned that chagas
can be transmitted congenitally, she encouraged her
daughters to undergo testing. The eldest daughter refused
the testing because some tests are irritating. Other
serological tests, such ELISA Immunosorbent, are available
and involve the mere drawing of blood. The other daughter
was tested by zenodiagnosis, and has tachycardia (a
rapid beating heart). Her results were negative for
chagas.
"Sarah"
Sarah is
a girl from Tarija, Bolivia. By the time she was seven,
she had been bitten by vinchucas as she slept.
Her mother removed the bug from her nightie, squashed
the bug on the floor and blood squeezed out. Sarah's
mother had grown up in a house filled with vinchucas
and hated them. Her mother said that the bugs were inside
their house, and she removed unnecessary items from
their sleeping areas but the walls needed to be plastered.
Sarah, though, didn't mind vinchucas and didn't
know that they were the cause of much suffering. Her
ducks liked to eat vinchucas.
Sarah likes
to dress up dolls and wants to someday grow up to be
a hairdresser. That may happen, although the vinchucas'
bites may change that. T. cruzi may have already
infected Sarah.
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